Mormon with rare skin disease paints, sings and reachs out to others

Imagine being a child with a condition where you are as fragile as a butterfly's wings. On the outside, physical wounds prevent you from normal daily activities enjoyed by other children. Yet on the inside, your dreams are the same as any other child who loves, plays, learns and grows despite the pain and impediment caused by your condition. This is what Jamie Hartley, a member of The Church of Jesus Christ of Latter-day Saints from Alpine, went through during her childhood, and she continues to live with her condition.

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